PIP assessment

I am way behind on posting I’ve not had the best couple of weeks health wise since going away. My assessment was on the 9th October I think I have as much chance of getting PIP as spending Christmas Day on Bondi Beach.

Questions like how do you do your shopping, I do it online, is that because you prefer online, no it’s because I can’t walk around a supermarket or stand in a queue. So how often do you go to the supermarket, I don’t because I can’t walk around and I can’t stand in a queue, so when you go shopping, I don’t go shopping as I can’t walk around and I can’t stand in a queue……. You get the idea??

One question that really threw me……. Can you read? I had to ask what she meant I thought she meant Do I read i.e. have I got enough concentration to read but no she meant Can I read…………………. Well Doh yes, you have already said when I filled my form in…………….how could I fill my form in if I couldn’t read and yes my form was signed by me, not by somebody else who said they had filled it in for me

Robotic questions, can you walk the length of 4 double-decker buses end to end if you say Yes this is a massive fail as that is more than the 50 metres so I was like No I can’t do this so then she asked again are you sure you can’t do this no I can’t well could you do it with a rest, possibly on a good day but you asked if I could walk the length the answer is NO

I got really upset and wished I hadn’t bothered to fill the forms in

They left my house I didn’t get up to go to the door with them as they wanted me to stand on one leg then the other I only managed one leg then was so dizzy I had to sit down they left my doors open and sat outside in a car for 25 minutes before they drove off, no doubt waiting to see if I jumped up and closed the doors……………. well no I couldn’t get up to close the doors I was too dizzy and it’s a good job I live in a safe area and that the weather was nice that day!!!


Bits and Bobs

I wasn’t able to update the pain got so bad it was difficult to sit and even be on the laptop. I don’t know what it was but thankfully it has subsided. I think it was probably due to the guar Gum in the coconut milk and thankfully things seem to eb a little better and I’m now using Koko dairy free

My free from  diet (wheat, sugar, dairy) lapsed somewhat over the last week, my husband has been on holiday and we have been out and about, my walking isn’t too good so we have to rely on drive thru’s or food he can bring to the car to eat. My best lunch this week was from Morrisons who do a small tub with carrot sticks and celery sticks and a pot of hummus in the top. Ideal for me and only cost £1

On Tuesday evening we went to see Our House at our local theatre, at first I wasn’t too impressed but now looking back it was quite good although maybe a bit too high energy and loud for me ………I find when I relapse I don’t tolerate noise very well and we were only 4 rows from the front and very near a speaker

Here’s the title song from it

We had 1tonne of green slate delivered as well to do a makeover on our back garden. My husband has worked hard this week I will do another posting showing the makeover bit by bit


Thankfully the weather has been glorious this week, he has been so lucky with the week he has had off 🙂

Ongoing health issues

So the last 3 weeks have been pretty abysmal. I started with backpain no idea where that came from then my dog was sitting next to me cuddled up and decided to straighten herself by launching off my hip, 40kgs right into my hip bone left me screaming in agony.

Along with this I had the most awful abdominal pain, couldn’t work out what was causing it. I started eating a no dairy, no wheat , no sugar diet earlier in the year to try and alleviate the awful symptoms I was having (the tachycardia) and it actually did bring some relief

I was thinking the other night what had I changed in my diet to bring about the abdo pain and all I could think of is I had changed my coconut milk to long life instead of fresh. So I decided to google abdo pain and coconut milk and BINGO there was my answer.

“Guar gum can cause gastrointestinal problems in some people. This natural thickener is made from a legume and is almost always added to canned coconut milk and canned coconut cream. If you experience symptoms when eating these coconut-based products, check the ingredients to see whether they contain guar gum. Experiment with a guar gum-free coconut milk or coconut cream to see if your digestion is better without this thickener”

I immediately went to the fridge and yes my Coconut milk had guar gum in it the previous one did not. Reading further into it Guar Gum can actually cause intestinal obstruction if it builds up too much. I am now back on the fresh coconut milk it has taken me almost 3 weeks to shift the abdo pain it’s still there slightly but not nearly as bad as it was.

I have a hospital appointment this afternoon with the Plastic Surgeons as I have a lesion on my nose ( a squamous cell carcinoma) which Dermatology wouldn’t touch as they said it needed specialist treatment as it may be quite large 😦

After that I have a telephone consultation with Occupational Health I have been referred by work. This should be fun I can’t wait to tell them all the things that led to my 2nd relapse

Good Intentions Going Completely Wrong

I had such good intentions of updating regularly and this week has just been a disaster. I have hurt my back, I do not know how but I have been in the most excruciating pain all week, painkillers aren’t touching it, I get in a hot bath in the morning and that really soothes it I try and do some stretches in the bath (yes I have a massive bath) and it feels much better until I then go to sit down and OUCH!!!

I received a letter from work saying they had been trying to get in touch with me and could they have my mobile number as they were referring me to Occ Health. I returned my number along with another sick note for a month. The day after I received another letter asking me to go in for a meeting on Friday at 11.30, I returned the letter saying due to ongoing health issues I would not be attending. I couldn’t get into work for 12 midday when I was supposedly well so how they expect me to get in for 11.30 when I am in a considerably worse state than when I was working I do not know.

I had a phone call from them on Friday I was in the bath, they left a voicemail,  would I return the call as soon as I got the message. I did 3 times and nobody picked up. Eventually, I got another call back I was told I was being referred to Occ Health, I said yes? You’ve already written and told me that? Yes well, I wanted to tell you in person. That was the end of the conversation. I received a letter later that day saying Occ Health will phone me on 15th August at 3pm. That day will be a busy day as at 1.30 I am due in the hospital out patients as I have a Squamous Cell Carcinoma on my nose that needs dealing with or in other words a Rodent Ulcer. It’s not a big issue as far as I’m concerned but when I attended Dermatology they seem to think it is covering a large area and that I need to see the Plastic Surgeon team.

I discovered a new Survey call Prolific.ac. It’s amazing I joined on the 23rd July and so far I have earned £27 I haven’t cashed out yet so I might not put it to this month’s earnings which will come in a separate post tomorrow.

I’m fed up of the wind and rain we have had floods here, flash floods, to me it seems the wettest July ever I’m sure this photo doesn’t01493d5c482dad4216acb7bec583628ca6363c7ca7 even do it justice

My dog was 8 this week and here’s a nice happy photo of her chewing her bone to finish on


End of another month

The doctor has put me off sick for another  4 weeks I don’t think I’m going to be able to return to work. I now realise that when I was off sick the beginning of the year my Managers should not have put me through a formal sickness process now that I have read the new sickness policy from September 2016 it states

This process is used for all sickness absence apart from long-term, terminal or underlying health conditions (see
the section on Long Term Absence for more information).

As my illness was an underlying health condition I should not have been called in every 4 weeks, in fact, these meetings probably had an adverse effect on my health and even from the 1st meeting I was given the date of the final meeting and told this would be dismissal I was reminded of this at every meeting,  I was referred to Fitforwork at my very first meeting , this did not bother me at all as I knew I was ill and I think my Managers were hoping Fitforwork were going to send me immediately back in …….. this, of course, did not happen and I was given a Fit note from them until mid-May. My managers not happy with this then mentioned the word dismissal again and “forced” me back to work, taking no notice whatsoever of the Return To Work programme that Fitforwork recommended. I cut my hours down myself as I knew that I could not manage the hours I was on before sickness, this has left me not paying any National Insurance not being eligible for SSP and I am now in the process of trying to claim ESA

I have had no contact with work since I have been off apart from me phoning to say I have another sick note etc

Life wasn’t easy when I did go back. I was constantly being called up to the office for one thing or another, there was a VERY long walk from the car park to my work that I really couldn’t manage due to the tachycardia and low blood pressure, were they bothered? Not at all.

I was dizzy constantly, my manager did ask me one day how I was feeling I said very dizzy, she said you haven’t got Gin in that water bottle have you…………..totally inappropriate I think, her idea of a joke? Sorry I wasn’t feeling it I felt totally humiliated by this

I really do not want to go back to work even if I had some miraculous cure overnight I feel I cannot go back to work for this company. I know I am not the only one that feels like this and I know that other people have left too because of the way they have been treated and nothing is done about it.

My pay has been wrong for the last 4-5 months I keep getting an adjustment in dribs and drabs but now finally I have the Payroll Head Office address and with the help of an accountant friend I will pursue it via that channel.

I might add that my company knew when I was taken on that I was disabled, my references also stated this. Why employ disabled people and then treat them unfairly?

Not a pleasant read I’m sure but an honest one.